siSimons_Shot

Simons_Shot

@simons_shot

Fighting to get life-changing treatment for Sanfilippo Syndrome Type B 💜!

Simons_Shot, bir TikTok içerik üreticisi: 119.9K takipçi, 1.9M beğeni. Videoları ortalama 820.8K izlenme alıyor; etkileşim oranı 1.8%. En çok kullanılan etiketler: #sanfilipposyndrome, #raredisease ve #childhooddementia.

https://www.supportnow.org/simon
119.9K
Takipçi
292
Takip
1.9M
Beğeni
820.8K
Ort. izlenme
Etkileşim: 1.8% Amerika Birleşik Devletleri 🗣️ İngilizce
#sanfilipposyndrome#raredisease#childhooddementia#mpsiiib#happyplace #sanfilipposyndrome#raredisease#childhooddementia#mpsiiib#happyplace#dance#stephcurry30#livemusic#nba#pleaseshare#momsover30#volunteers#fyp#3for3#specialneedsparenting#childhoodalzheimers#hoops#skills#timeforconnection#mpsiii#helpsimon#umyeah#autumn#sanfilippo#baskets#mps3b#adaptiveswim#trickshots#stephcurry#espn#thatsmile#family#support#basketball#trailwalk#momsoftiktok#yardwork#3pointers#forthree#stephencurry#musictherapy#outdoors#cool#simonstrong#genetherapy#shotcaller#humble#baller#playground#3outof3#pleasewatch#madskills#dowhatyoulove#talent#deepbomb#swish#play#gotskills
119.9K
Takipçi
1.9M
Toplam beğeni
820.8K
Ort. izlenme
896
Video
292
Takip
0
Favori
1.8%
Etkileşim

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Son güncelleme7 günlük tahmin30 günlük tahmin
Takipçi119.9K▼ 🔒 Pro🔒 Pro
Toplam beğeni1.9M🔒 Pro🔒 Pro
Video896🔒 Pro🔒 Pro
Ort. izlenme820.8K🔒 Pro🔒 Pro

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Son videolar

Son video: 2026-10-20

What a morning! 🌞❤️ These compassionate mothers—Betsy, Jessica, and Vanessa—and their kids generously gave a couple of hours of their day to help us pull weeds and trim hedges. Tasks that often get pushed to the bottom of the to-do list when you’re caring for a medically complex child. Not only did they prime our lawn canvas for future improvements, but they also took the time to get to know our Simon! Together, we sang a couple of his favorite songs. His new entourage joined him for a bike ride through the neighborhood. The kids played catch with him and built blocks alongside him. What a beautiful morning filled with helping hands, new friendships, music, play, and connection. ❤️ Thank you, CC4C, for organizing this special morning for our family, and thank you, Betsy, Jessica, and Vanessa, for so generously giving us these gifts—not just of your time and hard work, but of your time with Simon. We are so grateful! 🥰 #Volunteers #Yardwork #RareDisease #SanfilippoSyndrome #Support
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▶ 443 ❤ 0 💬 0

What a morning! 🌞❤️ These compassionate mothers—Betsy, Jessica, and Vanessa—and their kids generously gave a couple of hours of their day to help us pull weeds and trim hedges. Tasks that often get pushed to the bottom of the to-do list when you’re caring for a medically complex child. Not only did they prime our lawn canvas for future improvements, but they also took the time to get to know our Simon! Together, we sang a couple of his favorite songs. His new entourage joined him for a bike ride through the neighborhood. The kids played catch with him and built blocks alongside him. What a beautiful morning filled with helping hands, new friendships, music, play, and connection. ❤️ Thank you, CC4C, for organizing this special morning for our family, and thank you, Betsy, Jessica, and Vanessa, for so generously giving us these gifts—not just of your time and hard work, but of your time with Simon. We are so grateful! 🥰 #Volunteers #Yardwork #RareDisease #SanfilippoSyndrome #Support

We had a joiner on our regular Sunday family trail walk! 🌿☀️ Who’s next? 💚 #family #trailwalk #happyplace #timeforconnection
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▶ 487 ❤ 0 💬 0

We had a joiner on our regular Sunday family trail walk! 🌿☀️ Who’s next? 💚 #family #trailwalk #happyplace #timeforconnection

That smile! 🥰 Moving to his own groove for as long as he can. 🕺💜 #livemusic #dance #thatsmile #happyplace #raredisease
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▶ 803 ❤ 0 💬 0

That smile! 🥰 Moving to his own groove for as long as he can. 🕺💜 #livemusic #dance #thatsmile #happyplace #raredisease

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2026-11-04 itibarıyla Simons_Shot (@simons_shot) hesabının TikTok'ta 119.9K takipçisi var.

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