siSimons_Shot

Simons_Shot

@simons_shot

Fighting to get life-changing treatment for Sanfilippo Syndrome Type B 💜!

Simons_Shot to twórca na TikToku: 119.9K obserwujących, 1.9M polubień. Filmy mają średnio 820.8K wyświetleń, a wskaźnik zaangażowania wynosi 1.8%. Najczęściej używane hashtagi: #sanfilipposyndrome, #raredisease i #childhooddementia.

https://www.supportnow.org/simon
119.9K
Obserwujący
292
Obserwowani
1.9M
Polubienia
820.8K
Śr. wyświetlenia
Zaangażowanie: 1.8% Stany Zjednoczone 🗣️ angielski
#sanfilipposyndrome#raredisease#childhooddementia#mpsiiib#happyplace #sanfilipposyndrome#raredisease#childhooddementia#mpsiiib#happyplace#dance#stephcurry30#livemusic#nba#pleaseshare#momsover30#volunteers#fyp#3for3#specialneedsparenting#childhoodalzheimers#hoops#skills#timeforconnection#mpsiii#helpsimon#umyeah#autumn#sanfilippo#baskets#mps3b#adaptiveswim#trickshots#stephcurry#espn#thatsmile#family#support#basketball#trailwalk#momsoftiktok#yardwork#3pointers#forthree#stephencurry#musictherapy#outdoors#cool#simonstrong#genetherapy#shotcaller#humble#baller#playground#3outof3#pleasewatch#madskills#dowhatyoulove#talent#deepbomb#swish#play#gotskills
119.9K
Obserwujący
1.9M
Polubienia łącznie
820.8K
Śr. wyświetlenia
896
Filmy
292
Obserwowani
0
Ulubione
1.8%
Zaangażowanie

Wzrost i prognoza

Ostatnia aktualizacjaPrognoza 7-dniowaPrognoza 30-dniowa
Obserwujący119.9K▼ 🔒 Pro🔒 Pro
Polubienia łącznie1.9M🔒 Pro🔒 Pro
Filmy896🔒 Pro🔒 Pro
Śr. wyświetlenia820.8K🔒 Pro🔒 Pro

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Ostatnia aktualizacja:

Profil na TikToku

Najnowsze filmy

Najnowszy film: 2026-10-20

What a morning! 🌞❤️ These compassionate mothers—Betsy, Jessica, and Vanessa—and their kids generously gave a couple of hours of their day to help us pull weeds and trim hedges. Tasks that often get pushed to the bottom of the to-do list when you’re caring for a medically complex child. Not only did they prime our lawn canvas for future improvements, but they also took the time to get to know our Simon! Together, we sang a couple of his favorite songs. His new entourage joined him for a bike ride through the neighborhood. The kids played catch with him and built blocks alongside him. What a beautiful morning filled with helping hands, new friendships, music, play, and connection. ❤️ Thank you, CC4C, for organizing this special morning for our family, and thank you, Betsy, Jessica, and Vanessa, for so generously giving us these gifts—not just of your time and hard work, but of your time with Simon. We are so grateful! 🥰 #Volunteers #Yardwork #RareDisease #SanfilippoSyndrome #Support
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▶ 443 ❤ 0 💬 0

What a morning! 🌞❤️ These compassionate mothers—Betsy, Jessica, and Vanessa—and their kids generously gave a couple of hours of their day to help us pull weeds and trim hedges. Tasks that often get pushed to the bottom of the to-do list when you’re caring for a medically complex child. Not only did they prime our lawn canvas for future improvements, but they also took the time to get to know our Simon! Together, we sang a couple of his favorite songs. His new entourage joined him for a bike ride through the neighborhood. The kids played catch with him and built blocks alongside him. What a beautiful morning filled with helping hands, new friendships, music, play, and connection. ❤️ Thank you, CC4C, for organizing this special morning for our family, and thank you, Betsy, Jessica, and Vanessa, for so generously giving us these gifts—not just of your time and hard work, but of your time with Simon. We are so grateful! 🥰 #Volunteers #Yardwork #RareDisease #SanfilippoSyndrome #Support

We had a joiner on our regular Sunday family trail walk! 🌿☀️ Who’s next? 💚 #family #trailwalk #happyplace #timeforconnection
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▶ 487 ❤ 0 💬 0

We had a joiner on our regular Sunday family trail walk! 🌿☀️ Who’s next? 💚 #family #trailwalk #happyplace #timeforconnection

That smile! 🥰 Moving to his own groove for as long as he can. 🕺💜 #livemusic #dance #thatsmile #happyplace #raredisease
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▶ 803 ❤ 0 💬 0

That smile! 🥰 Moving to his own groove for as long as he can. 🕺💜 #livemusic #dance #thatsmile #happyplace #raredisease

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Najczęstsze pytania

Ilu obserwujących ma Simons_Shot?

Według stanu na 2026-11-04 Simons_Shot (@simons_shot) ma 119.9K obserwujących na TikToku.

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