Se vuoi ridere sei nel posto giusto😎 If u wanna laugh u r in the right place😎
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@simons_shot
Fighting to get life-changing treatment for Sanfilippo Syndrome Type B 💜!
Simons_Shot est un créateur TikTok, avec 119.9K abonnés et 1.9M j'aime. Ses vidéos cumulent en moyenne 820.8K vues, pour un taux d'engagement de 1.8%. Hashtags les plus utilisés: #sanfilipposyndrome, #raredisease et #childhooddementia.
https://www.supportnow.org/simonTarif estimé par publication sponsorisée: de $595 à $3K, sur la base d'environ 5 à 25 $ pour 1 000 abonnés. C'est une estimation à partir de la taille de l'audience, pas un revenu déclaré.
Dernière mise à jour:
Dernière vidéo: 2026-10-20
What a morning! 🌞❤️ These compassionate mothers—Betsy, Jessica, and Vanessa—and their kids generously gave a couple of hours of their day to help us pull weeds and trim hedges. Tasks that often get pushed to the bottom of the to-do list when you’re caring for a medically complex child. Not only did they prime our lawn canvas for future improvements, but they also took the time to get to know our Simon! Together, we sang a couple of his favorite songs. His new entourage joined him for a bike ride through the neighborhood. The kids played catch with him and built blocks alongside him. What a beautiful morning filled with helping hands, new friendships, music, play, and connection. ❤️ Thank you, CC4C, for organizing this special morning for our family, and thank you, Betsy, Jessica, and Vanessa, for so generously giving us these gifts—not just of your time and hard work, but of your time with Simon. We are so grateful! 🥰 #Volunteers #Yardwork #RareDisease #SanfilippoSyndrome #Support
We had a joiner on our regular Sunday family trail walk! 🌿☀️ Who’s next? 💚 #family #trailwalk #happyplace #timeforconnection
That smile! 🥰 Moving to his own groove for as long as he can. 🕺💜 #livemusic #dance #thatsmile #happyplace #raredisease
Au 2026-11-04, Simons_Shot (@simons_shot) compte 119.9K abonnés sur TikTok.
Se vuoi ridere sei nel posto giusto😎 If u wanna laugh u r in the right place😎
orca enthusiast meg thee stallion fan i post on youtube on saturdays (for the most part)
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Picnic At The Cemetery
Bringing a little more wonder into the world, 15 seconds at a time
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