siSimons_Shot

Simons_Shot

@simons_shot

Fighting to get life-changing treatment for Sanfilippo Syndrome Type B 💜!

Simons_Shot waa abuure TikTok oo leh 119.9K taageere iyo 1.9M like. Fiidiyowyadiisu waxay helaan celcelis ahaan 820.8K daawasho, heerka ka-qaybgalkuna waa 1.8%. Hashtag-yada ugu badan ee la isticmaalo: #sanfilipposyndrome, #raredisease iyo #childhooddementia.

https://www.supportnow.org/simon
119.9K
Taageerayaal
292
Uu raaco
1.9M
Like
820.8K
Celceliska daawashada
Heerka ka-qaybgalka: 1.8% Maraykanka 🗣️ Ingiriisi
119.9K
Taageerayaal
1.9M
Wadarta like-ka
820.8K
Celceliska daawashada
896
Fiidiyowyo
292
Uu raaco
0
La jecelyahay
1.8%
Heerka ka-qaybgalka

Kobcinta & saadaalinta

Markii ugu dambeysay la cusboonaysiiyaySaadaalka 7 maalmoodSaadaalka 30 maalmood
Taageerayaal119.9K▼ 🔒 Pro🔒 Pro
Wadarta like-ka1.9M🔒 Pro🔒 Pro
Fiidiyowyo896🔒 Pro🔒 Pro
Celceliska daawashada820.8K🔒 Pro🔒 Pro

Fur warbixinta oo dhan

Iimaylka xiriirka, taariikhda kobaca iyo saadaasha, iyo kaydka muuqaalada oo dhan waxay ku jiraan Pro.

Eeg warbixinta oo dhan →

Pro waa bilaash inta lagu jiro beta: tijaabi adigoo aan kaarka deynta u baahnayn.

Dakhliga la qiyaasay

Qiimaha la qiyaasay ee boosteyaasha kafaala-qaadka ah: $595 ilaa $3K, iyadoo lagu salaynayo qiyaastii 5 ilaa 25 doolar 1,000 taageere kasta. Waa qiyaas ku salaysan cabbirka daawadayaasha, ma aha dakhli la shaaciyay.

Markii ugu dambeysay la cusboonaysiiyay:

Profile-ka TikTok

Fiidiyowyadii ugu dambeeyay

Fiidiyowga ugu dambeeyay: 2026-10-20

What a morning! 🌞❤️ These compassionate mothers—Betsy, Jessica, and Vanessa—and their kids generously gave a couple of hours of their day to help us pull weeds and trim hedges. Tasks that often get pushed to the bottom of the to-do list when you’re caring for a medically complex child. Not only did they prime our lawn canvas for future improvements, but they also took the time to get to know our Simon! Together, we sang a couple of his favorite songs. His new entourage joined him for a bike ride through the neighborhood. The kids played catch with him and built blocks alongside him. What a beautiful morning filled with helping hands, new friendships, music, play, and connection. ❤️ Thank you, CC4C, for organizing this special morning for our family, and thank you, Betsy, Jessica, and Vanessa, for so generously giving us these gifts—not just of your time and hard work, but of your time with Simon. We are so grateful! 🥰 #Volunteers #Yardwork #RareDisease #SanfilippoSyndrome #Support
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▶ 443 ❤ 0 💬 0

What a morning! 🌞❤️ These compassionate mothers—Betsy, Jessica, and Vanessa—and their kids generously gave a couple of hours of their day to help us pull weeds and trim hedges. Tasks that often get pushed to the bottom of the to-do list when you’re caring for a medically complex child. Not only did they prime our lawn canvas for future improvements, but they also took the time to get to know our Simon! Together, we sang a couple of his favorite songs. His new entourage joined him for a bike ride through the neighborhood. The kids played catch with him and built blocks alongside him. What a beautiful morning filled with helping hands, new friendships, music, play, and connection. ❤️ Thank you, CC4C, for organizing this special morning for our family, and thank you, Betsy, Jessica, and Vanessa, for so generously giving us these gifts—not just of your time and hard work, but of your time with Simon. We are so grateful! 🥰 #Volunteers #Yardwork #RareDisease #SanfilippoSyndrome #Support

We had a joiner on our regular Sunday family trail walk! 🌿☀️ Who’s next? 💚 #family #trailwalk #happyplace #timeforconnection
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▶ 487 ❤ 0 💬 0

We had a joiner on our regular Sunday family trail walk! 🌿☀️ Who’s next? 💚 #family #trailwalk #happyplace #timeforconnection

That smile! 🥰 Moving to his own groove for as long as he can. 🕺💜 #livemusic #dance #thatsmile #happyplace #raredisease
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▶ 803 ❤ 0 💬 0

That smile! 🥰 Moving to his own groove for as long as he can. 🕺💜 #livemusic #dance #thatsmile #happyplace #raredisease

Su'aalaha inta badan la weydiiyo

Immisa taageere ayuu leeyahay Simons_Shot?

Illaa 2026-11-04, Simons_Shot (@simons_shot) wuxuu leeyahay 119.9K taageere oo TikTok ah.

Abuurayaal la mid ah

Abuurayaasha TikTok ugu sarreeya ee Maraykanka

Arag dhammaan →
charli d’amelio @charlidamelio
#2

orca enthusiast meg thee stallion fan i post on youtube on saturdays (for the most part)

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Hola linduras ✨ Únete al grupo 👇🏻

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