siSimons_Shot

Simons_Shot

@simons_shot

Fighting to get life-changing treatment for Sanfilippo Syndrome Type B 💜!

Simons_Shot ialah pencipta kandungan TikTok dengan 119.9K pengikut dan 1.9M suka. Videonya mendapat purata 820.8K tontonan, dengan kadar penglibatan 1.8%. Hashtag paling kerap digunakan: #sanfilipposyndrome, #raredisease dan #childhooddementia.

https://www.supportnow.org/simon
119.9K
Pengikut
292
Mengikuti
1.9M
Suka
820.8K
Purata tontonan
Penglibatan: 1.8% Amerika Syarikat 🗣️ Inggeris
119.9K
Pengikut
1.9M
Jumlah suka
820.8K
Purata tontonan
896
Video
292
Mengikuti
0
Kegemaran
1.8%
Penglibatan

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Pengikut119.9K▼ 🔒 Pro🔒 Pro
Jumlah suka1.9M🔒 Pro🔒 Pro
Video896🔒 Pro🔒 Pro
Purata tontonan820.8K🔒 Pro🔒 Pro

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Anggaran pendapatan

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Profil TikTok

Video terkini

Video terbaharu: 2026-10-20

What a morning! 🌞❤️ These compassionate mothers—Betsy, Jessica, and Vanessa—and their kids generously gave a couple of hours of their day to help us pull weeds and trim hedges. Tasks that often get pushed to the bottom of the to-do list when you’re caring for a medically complex child. Not only did they prime our lawn canvas for future improvements, but they also took the time to get to know our Simon! Together, we sang a couple of his favorite songs. His new entourage joined him for a bike ride through the neighborhood. The kids played catch with him and built blocks alongside him. What a beautiful morning filled with helping hands, new friendships, music, play, and connection. ❤️ Thank you, CC4C, for organizing this special morning for our family, and thank you, Betsy, Jessica, and Vanessa, for so generously giving us these gifts—not just of your time and hard work, but of your time with Simon. We are so grateful! 🥰 #Volunteers #Yardwork #RareDisease #SanfilippoSyndrome #Support
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▶ 443 ❤ 0 💬 0

What a morning! 🌞❤️ These compassionate mothers—Betsy, Jessica, and Vanessa—and their kids generously gave a couple of hours of their day to help us pull weeds and trim hedges. Tasks that often get pushed to the bottom of the to-do list when you’re caring for a medically complex child. Not only did they prime our lawn canvas for future improvements, but they also took the time to get to know our Simon! Together, we sang a couple of his favorite songs. His new entourage joined him for a bike ride through the neighborhood. The kids played catch with him and built blocks alongside him. What a beautiful morning filled with helping hands, new friendships, music, play, and connection. ❤️ Thank you, CC4C, for organizing this special morning for our family, and thank you, Betsy, Jessica, and Vanessa, for so generously giving us these gifts—not just of your time and hard work, but of your time with Simon. We are so grateful! 🥰 #Volunteers #Yardwork #RareDisease #SanfilippoSyndrome #Support

We had a joiner on our regular Sunday family trail walk! 🌿☀️ Who’s next? 💚 #family #trailwalk #happyplace #timeforconnection
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▶ 487 ❤ 0 💬 0

We had a joiner on our regular Sunday family trail walk! 🌿☀️ Who’s next? 💚 #family #trailwalk #happyplace #timeforconnection

That smile! 🥰 Moving to his own groove for as long as he can. 🕺💜 #livemusic #dance #thatsmile #happyplace #raredisease
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▶ 803 ❤ 0 💬 0

That smile! 🥰 Moving to his own groove for as long as he can. 🕺💜 #livemusic #dance #thatsmile #happyplace #raredisease

Soalan lazim

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Setakat 2026-11-04, Simons_Shot (@simons_shot) mempunyai 119.9K pengikut TikTok.

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