Stepsnie

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Why people with M.E/CFS get dizzy and lightheaded standing up. That head-rush, racing heart and near-faint when I stand isn't nothing, it's autonomic dysfunction, common alongside myalgic encephalomyelitis (M.E/CFS) and often overlapping with PoTS. The body struggles to regulate blood flow and heart rate, so being upright is genuinely hard work. It's why I sit to shower, dress and cook. If standing makes you dizzy and exhausted, mention it to your doctor. #MECFS #Dysautonomia #PoTS #MyalgicEncephalomyelitis #InvisibleIllness

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Hotels vs Airbnb with M.E/CFS, what actually works. Where you stay can make or break a trip with myalgic encephalomyelitis (M.E/CFS). I weigh it on energy: a hotel means no cooking, cleaning or stairs and help on hand, huge for low-energy days. A self-catered place means control over food, quiet and routine. There's no universal answer, but matching the accommodation to your energy needs, not the price tag, is the real decision. #TravellingWithChronicIllness #MECFS #SpoonieTravel #DisabledTravel #ChronicIllnessTips

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Involving your child in pacing when home educating with chronic illness. Living with myalgic encephalomyelitis (M.E/CFS), I've brought the child into how pacing works, age-appropriately. She understands "good days and bad days," helps with small tasks, and knows that rest is non-negotiable, not optional. It lightens my load AND raises an empathetic, capable human who understands energy, boundaries and care. Chronic illness can teach life skills school never touches. #HomeEdUK #ChronicIllness #MECFS #DisabledMum #SpoonieMum