Tori LaBrie

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Juggling ADHD, autism, and Moebius Syndrome here means constant caregiving, doctor’s appointments, decoding needs without words, therapies, phone calls, IEP meetings, being a nurse without the degree. It’s chaotic and exhausting, but it’s taught me more about myself than I could ever imagine. To my children, thank you for giving me purpose beyond measure. #autism #adhd #moebiussyndrome #sensoryprocessingdisorder #PICA #nonverbal #gestaltlanguageprocessing #echolalia #absenceepilepsy #facialparalysis #clubfoot #hydrocephalus #caregiverlife

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We get told a lot that we should just close her eyes for her, which we do, but we gotta lift up her whole face to make it work. She sure loves it though 🥹 sweet girl #moebiussyndrome #facialparalysis #eyes

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I was always so excited when my 3d ultrasounds would show my little Hazel with her eyes open. Immediately when she was born with those big beautiful eyes wide open I looked at the nurse and said, “that’s not right, is it..” What was my favorite part of seeing my baby was actually facial paralysis, and I had no clue.

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I had a baby and instead of bringing her home, I watched my entire world turn into hospital rooms, monitors, feeding tubes, MRIs, specialists, a whole bunch of words I had never heard before, and a brand new baby that can not blink. There’s a different kind of strength that comes from being a NICU mom. You don’t really choose it, and half the time you probably don’t even feel strong while you’re in it. You just love your baby and somehow keep going. NICU moms, show me you then vs. you now. 🤍 #babyhazel #nicubaby #nicumom #medicalmom #caregiver

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My favorite sound 💕 sorry my camera is broken! #babyhazel #moebiussyndrome #facialparalysis #giggles

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Parents of juniors, how are we? #junioryear #highschool #backtoschool #tradition #almostdone

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Hazel loved her first wedding 🤍 #babyhazel #moebiussyndrome #wedding #caregiver #dance

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It’s been a while 🖤 #babyhazel #moebiussyndrome #facialparalysis #toddlersoftiktok #medicalmom

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@VT I swear I’m trying 🤣😭 Also accepting applications from fellow Type B friends because… you get it. #sociallyawkward #behindthescenes #interviewfail #hazelsmom #typeb

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Finally, something made for the see-through girlies. #tiktokmademebuyit #beautyfinds #nofilter #drmelaxin #calcium

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Somehow the months keep moving even when parts of me still feel stuck at the beginning. She’s growing and changing and becoming more herself every day, but month 19 has been a little heavier on my heart. #babyhazel #moebiussyndrome #medicalmom #motherhood #childhood

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Kids don’t stop having feelings just because they’re inconvenient. I think somewhere along the way we started expecting children to regulate emotions that most adults still can’t regulate themselves. If I expect people to have patience with me when I’m overwhelmed, then I owe my kids that same patience when they’re overwhelmed too. They don’t need me to agree with every feeling. They need to know I’m a safe place to have those feelings and a steady guide who will teach them how to regulate through them. When I say our motherhood journeys aren’t the same, I don’t mean one of us loves our kids more. I mean we have fundamentally different priorities. My priority isn’t raising children who make my life easier. It’s raising children who know their emotions are safe with me and who leave childhood knowing how to navigate them. That’s the difference for me. #GentleParenting #ConsciousParenting #Motherhood #ParentingTok #EmotionalIntelligence