Scleroderma Research Fdtn.

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“I #SayScleroderma because awareness is still very limited, and many patients struggle with delayed diagnosis, fear, and uncertainty,” says Naina Sanikop (dx 2006). Watch the video to hear her share what life with scleroderma looks like, and how she's found strength along the way. Naina’s experience reflects what so many living with scleroderma know too well, and why raising awareness this June is so critical. Uplifting the voices of those in this community is at the core of Scleroderma Awareness Month—so that every story, every voice, and every share brings us closer to a world where nobody is left to face this disease without answers. This month, the Scleroderma Research Foundation, the Scleroderma Foundation of California, the Scleroderma Foundation of Greater Chicago, and Scleroderma Outreach Northwest are uniting forces—because when more voices join us to #SayScleroderma, we can get louder and reach farther than ever before. Ready to make an impact this Scleroderma Awareness Month? Learn more about #SayScleroderma using the link in the first comment below.

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How do doctors test for interstitial lung disease? With ILD Day just around the corner, we're looking back at this clip from last year's webinar, where Toby Maher, MD (Professor of Clinical Medicine at the Keck School of Medicine of University of Southern California and CONQUEST Co-Principal Investigator) breaks down the tests used to detect and monitor scleroderma-associated ILD (SSc-ILD). Want to learn more? Join us on September 15 (9 AM PST / 12 PM EST) for our upcoming FREE webinar, "Staying Ahead of Scleroderma-ILD: Understanding Progression and Treatment Options". This session is designed for anyone, whether you live with this disease or you just want to understand more about this scleroderma complication. At the webinar, Dr. Maher will be back to go beyond the basics of ILD—diving into SSc-ILD progression, what symptoms to watch for, and available treatment options for the condition. Plus: stick around after the presentation for a live Q&A, moderated by Dr. Greg Gordon, Chief Medical Officer at the Scleroderma Research Foundation. Secure your spot at this year's event—register now at the link in the first comment below!

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Don't miss our upcoming FREE live webinar on scleroderma-associated interstitial lung disease (SSc-ILD). 🫁 Registration for the webinar is now open: 📅 Tuesday, September 15 🕐 9AM PST/12PM EST 📍 Online Hear from Toby Maher, MD, Professor of Clinical Medicine at the Keck School of Medicine of USC and CONQUEST Co-Principal Investigator, for a deeper dive into SSc-ILD. After the session, bring your ILD questions to the live Q&A, moderated by SRF's Chief Medical Officer Dr. Gregory Gordon. Learn more about the event and secure your spot at the link in the first comment below.