jesynelson

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I cannot believe it has been a whole year since having my beautiful baby girls. They have been through so much. There will never be enough words to describe just how incredible they actually are. My tiny little super humans. The strongest, most resilient little fighters I’ve ever known. You inspire me and every single person that ever meets you both . One whole year old today what a mile stone to reach . I read this poem a little while ago by Emily Perl Kingsley “welcome to Holland” and I think this sums up their journey so beautifully. Happy Birthday my Ocean and Story you are my whole heart and soul I love you more than you will ever know 🤍🤍 Adapted from “Welcome to Holland” by Emily Perl Kingsley. Original work by Emily Perl Kingsley.

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Yesterday, MPs debated my petition after more than 150,000 people signed in support of newborn screening for SMA. Thank you to everyone who signed, shared and supported this campaign. Every single action helped bring this issue into Parliament and gave families affected by SMA a voice. We've already achieved incredible progress: newborn screening for SMA is due to begin in October, giving babies the chance of earlier diagnosis, earlier treatment and a healthier future. However, only 72% of babies in England* will initially be covered. That means a baby's access to life-changing treatment could still depend on where they're born, and that simply isn't fair. Every baby deserves the same chance, regardless of their postcode. I'm now calling on @jamesmurray_ldn MP, Secretary of State for Health and Social Care, and @sharonhodgsonmp, Parliamentary Under-Secretary of State for Public Health and Prevention, to provide a clear timeline for when newborn SMA screening will reach 100% coverage across England and I'd welcome the opportunity to meet with ministers alongside SMA families to discuss the rollout and concerns raised during the debate. Early diagnosis saves lives, prevents irreversible damage and gives children the best possible start. No parent should ever wonder if their child missed that chance simply because of where they were born. Every baby deserves the same chance. Every life matters❤️

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I cannot believe I can finally say that SMA screening will now officially be rolled out across the whole of England with 7 sites starting from October 2026 and the remaining 6 to be included by October 2027! I can’t even express to you how proud I feel of every single person that got it to this point. We made change, change that will now make such a huge difference to babies that will be diagnosed with SMA from birth, their lives will now look completely different and I just am so proud! Thank you again to everyone who supported, you have no idea what it means. 🤍#

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NTA’s 🖤

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Hey guys, just wanted to update you all… As you know, my petition to get SMA included in the newborn heel prick test has now reached over 150,000 signatures, which is honestly incredible. Thank you so much to every single person who has signed and shared it🥹 But there’s still a big problem… it will only cover 72% of England. That means some babies won’t be screened simply because of where they live. A postcode lottery like that just isn’t fair. Every baby deserves the same chance. On Monday 22nd June, the petition will be debated by MPs in Parliament. I’ll be there alongside Giles from SMA UK and we’re hoping this debate will help push for screening to be available for every newborn across England. We’ll be arriving at 5pm on Monday, and it would mean so much to see as many of you there as possible. We’d love to get a photo together outside Parliament before we head inside❤️ Please if you can, tag your MP in the comments and ask them to attend the debate and support universal newborn screening for SMA. The areas currently missing out on screening are: Bristol Cambridge Portsmouth Leeds Liverpool Oxford No baby should miss out because of their postcode. Let’s keep fighting until every newborn has the same opportunity. Thank you for standing with us every step of the way!

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Anyone that really knows me knows how much I bloody love Towie. Flipping love these two 🤣 #iconic #towie

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Today’s glam 🤍

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GLAM 🎨

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When life throws you lemons……