AdmirableAria

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‼️ Link in BIO ‼️ I’m reaching out as a desperate mom, hoping you’ll hear my plea. My daughter Aria’s life is on the line, and PKAN is taking her from me with every passing day. This disease is relentless, stealing her laughter, her smile, and her sparkle. Every day, I watch her fight, and I’m fighting alongside her. But I need your help. The Loving Loic Foundation’s clinical trial is her only chance, and time is running out. I’m asking you to purchase something from Aria’s shop and share her story with your followers. Share her smile, her strength, and her struggle. Let them see the real person behind this disease. You and your followers can donate to her Shop and share Arias Fight. Every bit brings us closer to saving Aria’s life. These donations go towards a gene therapy trial! I’m asking as a mom who’s running out of options. Please, help me fight for my daughter’s life. Let’s give Aria a chance to grow up, to laugh, to live. Website: https://www.customink.com/fundraising/admirablearia 💙 If you don’t want an item from shop go to lovingloic.org to Donate. Thank you all so much for your consistent support of my daughter.

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Hearing 'I love you mommy' from my sweet Aria is everything, a sound I cherish with all my heart. But the devastating reality of PKAN is knowing that one day, this beautiful voice, these precious words, will be lost. This disease will eventually steal her ability to speak and communicate. We're fighting for every single moment and raising awareness for PKAN and its silent battles. Let's make every 'I love you' echo forever. There's a clinical trial that holds the cure, but it desperately needs more funding. Please consider donating to help us get that cure: lovingloic.org❤️ #PKAN #RareDiseaseAwareness #CherishEveryWord #MomAndDaughter #PKANWarrior

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THE $1 CHALLENGE 💜 STOP scrolling for 10 seconds. What if helping fund gene therapy for PKAN only cost $1? Because it does. If 1.5 million people donate just $1, we can raise $1.5 million for life-changing research. That’s less than a coffee. Less than a snack. But together it could mean hope for families living with this rare and devastating disease. Here’s the challenge: 💜 Donate $1 at lovingloic.org 💜 Share this post so it reaches the next person 💜 Tag 3 friends to keep the $1 chain going Rare diseases stay invisible until people speak up. Your $1 and one share could help change that. Link is in my bio. Let’s see how far $1 can go.@lovingloic @madelines.mission 💜